Data & Research Links

        Florida specific data can be found at the following sites:

• Florida Community Health Assessment Resource Tool Set (CHARTS)

Information about international birth defects organizations and issues can be found at the following sites:

• The International Clearinghouse for Birth Defects
• The National Academies Press: Reducing Birth Defects: Meeting the Challenge in the Developing World (pdf)
• European Network of Teratogen Information Services (ENTIS)

Information about national birth defects organizations and general information can be found at the following sites:

• March of Dimes (MOD)
• Centers for Disease Control and Prevention (CDC) National Center on Birth Defects and Developmental Disabilities (NCBDDD)
• National Birth Defects Prevention Network (NBDPN)               
• Guidelines for Birth Defect Surveillance
• Organization of Teratology Information Specialists (OTIS)
• Birth Defect Research for Children, Inc.
• Teratogen Information System (TERIS)
• Teratogy Society
• National Birth Defects Prevention Study
• The National Information Center for Children and Youth with Disabilities
• Florida Department of Health Children's Medical Services-Early Steps
• National Organization of Rare Disorders
• OB/GYN.net
• Parent Pals.com

Information about other population-based state birth defects surveillance programs can be found at the following sites:

What You Can Do Before and During pregnancy

Information about general birth defects prevention can be found at the following sites:

• Centers for Disease Control and Prevention: Preventing Birth Defects Before and During Pregnancy
• March of Dimes Pregnancy Answers
• American Pregnancy Association: Tips For Preventing Birth Defects
• Texas Birth Defects Registry: Preventing Birth Defects
• Utah Birth Defect Network: What can I do to have a healthy baby?
• Minnesota Department of Health: Preventing Birth Defects
• What to Expect at your Prenatal Visits

Information about sexually transmitted infections can be found at the following sites:

• March of Dimes: Sexually Transmitted Infections
• Florida Department of Health: Bureau of Sexually Transmitted Disease

Information about maintaining a healthy weight can be found at the following sites:

• A Healthy Baby is Worth the Weight (healthy weight gain and Body Mass Index (BMI) calculator)
• Baby Your Baby
• Learn about Body Mass Index (BMI)
• BMI - Body Mass Index

Eye Defects

Information about eye defects can be found at the following sites:

• National Library of Medicine Genetics: Aniridia
• National Library of Medicine Genetics: Anophthalmia
• National Library of Medicine Genetics: Microphthalmia

Ear Defects

Information about ear defects can be found at the following sites:

• Congenital Ear Institute
• Microtia-Congenital Ear Deformity Institute
• My Child Has Microtia, Children's Hospital Boston
• The National Craniofacial Association: Microtia
• The New York Eye&Ear Infirmary
• Texas Department of State Health Services: Anotia and Microtia Birth Defects Risk Factor Series

Gastrointestinal Defects

Information about gastrointestinal defects can be found at the following sites:

• Cincinnati Children's Hospital Medical Center: Biliary Atresia
• National Library of Medicine's Medline Plus: Biliary Atresia
• My Child Has Biliary Atresia, Children's Hospital Boston
• My Child Has Tracheoesophageal Fistula and Esophageal Atresia, Children's Hospital Boston
• UCSF Medical Center Esophageal Atresia and Tracheoesophageal Fistula in Newborns: A Guide for Parents
• UCSF Medical Center Pediatric Surgery: Esophageal Atresia and Tracheoesophageal Fistula
• UCSF Medical Center Pediatric Surgery: Hirschsprung's Disease
• My Child Has Hirschsprung's Disease, Children's Hospital Boston
• UCSF Medical Center Surgery for Children with Hirschsprung's Disease: A Guide for Parents
• My Child Has Pyloric Stenosis, Children's Hospital Boston
• UCSF Medical Center Pediatric Surgery: Pyloric Stenosis
• Cincinnati Children's Hospital Medical Center: Intestinal Atresia and Stenosis
• My Child Has Duodenal Atresia or Stenosis, Children's Hospital Boston

Genitourinary Defects

Information about genitourinary defects can be found at the following sites:

• My Child Has Exstrophy of the Bladder and Epispadias, Children's Hospital Boston
• Association for Bladder Exstrophy Community
• Hypospadias and Epispadias Association
• My Child Has Hypospadias, Children's Hospital Boston
• Keepkidshealthy.com: Hypospadias
• Texas Department of State Health Services: Renal Agensis Birth Defects Risk Factor Series
• Minnesota Children with Special Health Needs Health Condition: Obstructive Genitourinary Defect Fact Sheet

Fetal Alcohol Spectrum Disorders

Information about alcohol and substance abuse can be found at the following sites:

• The National Organization on Fetal Alcohol Syndrome
• The FAS Family Resource Institute
• Centers for Disease Control and Prevention (CDC): Fetal Alcohol Spectrum Disorders
• SAMHSA Fetal Alcohol Spectrum Disorders (FASD) Center for Excellence
• Facts About Alcohol Use During Pregnancy
• The March of Dimes Drinking During Pregnancy Information Page